What is Multiple Sclerosis?
Multiple Sclerosis is a chronic inflammatory condition affecting the central nervous system. It is thought to be the most common cause of disability among young New Zealanders although the exact number of people living with MS is not currently known.
What causes MS?
It is not yet known what causes MS, but we do know that the number of people within the population who have MS (i.e. “the prevalence”) varies significantly between countries and even between different geographical locations within the same country.
MS is thought to result from a complex interplay between both genetic and environmental factors. It has been shown that people with certain sorts of ancestry can be more prone to MS, and that other types of ancestral heritage can protect groups from developing MS.
However, genes on their own do not cause MS; environmental factors also seem to play a role. One possible environmental factor that has particular relevance to New Zealanders is the amount of sunshine a person is exposed to during childhood.
HBMS Society
The HBMS Society based in Onekawa, Napier, provides a support and advocacy service for members and their families. The society also supports anyone diagnosed with a neurological disorder that does not have an association or support network available to them within Hawke’s Bay: these include people diagnosed with Motor Neurone Disease, Muscular Dystrophy, Frederick’s Ataxia, Dystonia and many other neurological disorders.
At present there are over 100 people diagnosed with MS and other neurological disorders receiving support from the HBMS Society. The ratio is 1 man to every 3 women diagnosed with MS and approximately 4000 people in New Zealand diagnosed with MS. In Hawke’s Bay the youngest diagnosed is 23 years old. The Society provides a fieldworker service which assists members with a variety of issues that arise from a diagnosis such as this. Its role is not only to provide knowledge and education regarding Multiple Sclerosis but to run social groups for its clients as needs arise.
Most years it provides a family camp that many families with a diagnosis of MS find extremely beneficial primarily because the person with the diagnosis is able to participate safely in activities and push their personal boundaries and the family members are able to make friends with other people in a similar situation. It also runs workshops on different topics relating to its client base – workshops on legal issues such as Power of Attorney, wills, funerals, health and may [many] other subjects in which, when appropriate, the public are encouraged to participate.
The HBMS Society covers the HBDHB area from Wairoa in the north to the Takapau Plains and like many other not for profit organisations within Hawke’s Bay are struggling to fund the services that are vital to the wellbeing of its client base. The service provided is extremely valuable to our members providing a service that enables them to participate as fully as possible in our Hawke’s Bay community.
We are indebted to Gillian Davies the cast and team of supporters for undertaking this mammoth production on our behalf. Thank you.
MS
NEW ZEALAND
Jeff Silvester
President
MS House, 72 Austin Street
Onekawa, Napier
Ph: 06 8433000
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